AHSNRecognize, Record, Refer
A two-hour workshop, in person or live virtual, for clinicians and aging-services providers. Participants learn to notice new or worsening changes across six areas of daily function, document them clearly, decide how quickly to communicate them, and refer to the right medical team.
Notice, Note, Speak Up
A six-session caregiver series, about 75 minutes each, in person or live virtual. Families and care partners learn the basics of adult hydrocephalus, a simple way to write down changes, home-safety ideas, a plan for warning signs, and ways to care for themselves.
The six caregiver sessions
| Session | Topic | Take-home tool |
|---|---|---|
| 1 | Hydrocephalus in adults | Usual Day Snapshot |
| 2 | Noticing and writing down changes | Weekly Change Log |
| 3 | Walking, balance, and a safer home | Home Safety Walk-Through |
| 4 | Thinking, routines, medicines, and the bathroom | Medicine list and routine card |
| 5 | Shunts, warning signs, and your plan | Emergency Information Sheet |
| 6 | The care team and caring for yourself | Appointment Worksheet and Self-Care Plan |
Functional Recognition Toolkit
Simple, shared tools that help partners describe what changed, when it started, and how it affects the day, and send that information to the care team. Professionals and families use the same six areas and the same language.
Peer support and resources
Connecting adults with hydrocephalus and their families with each other, and with support in Delaware and nationally.
Our Delaware pilot
AHSN is preparing a 12-month pilot in Delaware that brings together the workshop, the caregiver series, and the toolkit. We will track attendance, feedback, and how useful the tools are, so the programs can improve and be shared with other states. We do not collect patient names or medical records.
Interested in the pilot?
Agencies, clinics, senior centers, and families are welcome to reach out.